It is only a garden, but it wants to be a place of peace and beauty for all, without any kind of distinction.
It's a place for spiritual peace.
Life that continues with the passing of the seasons it wants to be a message of hope, it wants to help us have that faith in life that is eternal, that one day will give us back the joy of embracing once again the people we loved so much and lost too soon.
It's also an occasion for us to keep awareness of metabolic congenital diseases alive.
One of these diseases OCT deficit took Sara away from us; a sudden and serious metabolic deficit, that we werenít able to predict notwithstanding years of attention and cures.
So goes for some metabolic diseases. You spend years trying to maintain a sort of equilibrium that allows you to "stay well", then the crisis arrives that escapes any kind of therapy, or the doctor isn't a specialist for that kind of disease, doesn't know that timeliness is fundamental and doesnít take the situation seriously, or the hospital hasn't even got the necessary medications and once again loses precious time.
Through the Garden and the use of the Internet we would like to help parents of metabolic kids and to collect information, in the hope that this will be useful so that one day metabolic congenital diseases may be recognized in both the normative and medical fields (as of today there are no specific programs for teaching at university campuses), so that the activity of those few groups that are interested in this pathology, nearly always formed by researchers directly committed to clinical activities and are also committed to the formation of the small number of operators of their group, is not obstructed by even the economical choices made by the general directors of the sanitary companies.
- testi in lingua inglese: Frank Torrecuso -